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i’ve started a new blog: cluster-headache.blogspot.com, to chronicle doc’s perserverance in dealing with this disease (or disorder/condition/state of being broken, whatever you want to call it) and my experiences in supporting him.
as of tonight, it’s only got maybe 10% of the entries posted. it goes as far back as 1999, and i’m only up to march 2000. i’m transcribing what we’ve handwritten in the curious george journal that lives in our bathroom.
i plan to publicize the blog to the cluster community; they may be interested in reading it and commenting in it.
i also hope that it serves as a resource for me as i delve into making my first documentary film — about cluster headaches.
wow. that is painful to read. i think you really do need to make a documentary about this…
yeah, it pretty much sucks unimaginably.
i want to do the film as much for personal peace of mind as anything else.
’cause nobody truly understands this, who hasn’t actually had one themselves… even those of us who are just supporters of sufferers can’t really comprehend what’s going on.